Monday, April 04, 2022

Informa Connect's Rare Disease Innovation & Partnering Summit

Rare Disease Innovation & Partnering Summit
Hybrid Event
May 17-19, 2022 | Boston, MA
www.informaconnect.com/rare

Don’t miss the Rare Disease Innovation & Partnering Summit, coming up May 17-19, 2022 in Boston, MA.

Visit www.informaconnect.com/rare for further details and to register. Drug Channels readers will save 10% off when they use code 22DRCH10 and register prior to April 29, 2022.*

When you join us this spring, you’ll be part of the important discussions surrounding patient access, reimbursement, commercialization, launch, partnering and more. Come together with experts from across the rare disease community, in-person or virtually, to unite in areas of unmet medical need and create life-transforming therapies and breakthroughs.

We’ll cover the hottest topics impacting you today, from speakers representing Alexion, Angelman Syndrome Foundation, bluebirdbio, Cognito Therapeutics, CURECMT4J, Cydan, the FDA, Global Genes, NS Pharma, Rafael Pharma, Sanofi, TaretCancer Foundation, Tremeau Pharma, Ultragenyx, and more.
  • Strengthening Patient Relationships Authentically to Enhance Therapeutic Development
  • The Search for Novel Funding - Preparing for and Expanding Successful Partnering
  • Understanding the Patient Journey
  • Clinical Management of Patients with Complex Conditions
  • Discovering Patient Support Program Needs for Patients
  • Patients and Payers: Perspectives on Developing Gene Therapies for Rare Diseases
  • Prioritizing RWE Collection in a New Era of Novel Gene Therapy
  • Optimizing Strategic Partnership Models and Investment for Orphan Drug Products
  • Developing and Scaling Digital Therapeutics
  • Leveraging Genetic Testing for Value
  • Fostering Relationships Between Industry and Advocacy
  • Uncovering Risk Disclosures for Gene Therapies
  • Optimizing Decentralized Trials to Support the Future of Rare Disease Research
  • PLUS - Your registration to the Summit includes a complimentary pass to Selections from The DISORDER Channel, an annual viewing of short films addressing the day-to-day challenges and struggles of rare disease patients and their families.
View the agenda to see the complete picture – the program, speakers, and more!

Visit www.informaconnect.com/rare for further details and to register. Drug Channels readers will save 10% off when they use code 22DRCH10 and register prior to April 29, 2022.*

*Cannot be combined with other offers or used towards a current registration. Cannot be combined with special category rates or other offers. Other restrictions may apply.


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